We Exist to Enhance the Lives of Children with Chronic Illness and their Families through Focused Advocacy and Research

Welcome to Child UnLimited

At Child UnLimited, we are dedicated to improving the lives of children living with chronic illness through robust advocacy, research, and community engagement. Our mission is to drive advancements in healthcare and support systems that empower these young lives.

As you navigate through our site, you’ll discover the various ways we're making a difference in the lives of children and families across Australia. From groundbreaking research to impactful programs and engaging events, we’re committed to fostering environments where children with chronic conditions can thrive.

Join us in our journey to transform lives and build brighter futures. Explore our latest projects, upcoming events, and opportunities to get involved. Together, we can create limitless possibilities for children everywhere.

Thank you for visiting and for your interest in supporting our cause!


Did you know approximately ONE IN FIVE Australian children live with chronic illness?

Chronic diseases profoundly impact the lives of countless individuals, and unfortunately, this burden also extends to the youngest members of our communities. In Australia, an alarming one in five children live with chronic disease, facing challenges that affect not only their physical health but also their emotional well-being and social development. This statistic underscores the critical need for targeted healthcare strategies and supportive services to improve the quality of life for these children and their families.

As medical advances improve survival rates, our health systems are responsible for managing the long-term, chronic conditions of these survivors—a challenge that requires innovative and effective solutions.

At Child UnLimited, we are committed to empowering a unified national voice to enhance the lives of children with chronic illness and their families. Our mission focuses on unified advocacy and rigorous research to address the myriad challenges these children face daily. By understanding and addressing these issues, we aim to help each child live their best life and reach their full potential.

  • Chronic illness necessitates ongoing, sometimes intensive, medical care that can profoundly affect a child's everyday life. Daily medications, frequent blood tests, and prolonged hospital stays are common realities for these children. Such conditions disrupt their education, limit social interactions, and often lead to psychological stress and diminished physical well-being.

    At Child UnLimited, we are dedicated to researching and advocating for more effective solutions that can improve the holistic well-being of these children, ensuring they do not just survive but thrive.

  • The challenges of managing a chronic illness extend to the entire family, creating significant emotional and financial burdens. Families often face overwhelming healthcare costs and caregiving demands, which can cause significant stress and disrupt family dynamics. This is especially true for families from rural, culturally diverse, or Indigenous backgrounds. Our work at Child UnLimited includes developing support systems and advocating for policies that recognise and address these family challenges, helping to alleviate the pressures they face.

  • More than 20% of all Australian children require hospital care for chronic conditions, with many more depending on community and primary care services. This ongoing demand stretches our health systems and impacts the economy through increased healthcare costs and lost productivity. Child UnLimited is actively involved in shaping health policies and creating innovative care models that aim to streamline and improve the management of chronic illnesses. Through our research and advocacy, we seek to establish a standardised approach to care that reduces the economic burden and enhances the efficiency and effectiveness of health services.

Our Goal

At Child UnLimited, we recognise these gaps and are actively working towards innovative solutions that address the needs of children with chronic illness. Our goal is to reduce the 'whole of life' impact of chronic illnesses through better coordinated care across hospitals, primary health care providers, and community organisations, ensuring that every child has the opportunity to thrive and lead a fulfilling life.


WHAT’S IT LIKE living with chronic illness?

Approximately one in five Australian children lives with a chronic illness. These children encounter numerous daily challenges including compromised physical health, hindered educational achievements, disrupted social networks, emotional distress, and significant financial strain. As medical advances improve survival rates, our health systems are now responsible for managing the long-term, chronic conditions of these survivors—a challenge that requires innovative and effective solutions.

In this video, young Australians share their stories of living with chronic illness, and a mother tells her story.

Discover more inspiring stories from children and families navigating life with chronic illness, and see how resilience and community support make a difference.


Shaping Our Future: Our IMPACTFUL PROJECTS

Discover how Child UnLimited is making a profound difference through our impactful projects, each tailored to address the unique challenges faced by children with chronic illnesses.

  • Transition Compass

    Overview: Chronic health conditions often transition from child to adult services. We address the lack of national standards with our innovative model.

    Impact: Collaboration with ACI Transition Care Network, hosting a national roundtable, and a $4.7 million NHMRC MRFF grant.

    Timeframe: 2023 - 2028

    Lead: Jordana McLoone

  • Strengthening Care for Rural Children (SC4RC)

    Overview: Adaptation of the SC4C model for rural settings to improve access and outcomes in paediatric care.

    Impact: $3M grant for evaluation, aiming to integrate into routine primary care.

    Timeframe: 2022 - 2026

    Leads: Raghu Lingam and Lena Sanci

  • Youth Mentorship Program

    Overview: Empowering young people with skills to become health advocates, co-designed by consumers.

    Impact: Engagement in consumer activities, grant proposal feedback, and research presentation.

    Timeframe: 2023 - 2024

    Lead: Kristine Pierce

  • Rural Kids GPS

    Overview: Expansion of the Kids Guided Personalised Service to rural areas, reducing ED visits and travel for families.

    Impact: A $2.5 million annual savings to the health system, enhanced care coordination.

    Timeframe: Ongoing since 2015

    Lead: Raghu Lingam

EXPLORE Our Efforts and ENGAGE with Our Work

Dive into the heart of our work by exploring our robust partnerships, latest news, and strategic goals aimed at transforming child health and advocacy.


  • Our Research Partners

    Child UnLimited collaborates with a diverse network of esteemed research partners across Australia, each contributing unique expertise and resources to advance our mission of enhancing the lives of children with chronic illnesses.

  • Our Goals and the Election Commitment Request

    Child UnLimited sets strategic goals to influence policy and secure election commitments, aiming to shape a future where every child living with chronic illness receives the care they deserve. Click the 'Learn More' button to discover how you can support our initiatives.

  • Latest News

    Stay informed with the latest updates and breakthroughs from Child UnLimited, where we bring you closer to the developments that matter in child health advocacy. Click 'Read More' to read our recent news articles.


Join the Child UnLimited Community

Welcome to Child UnLimited! We are dedicated to enhancing the lives of children with chronic illness and their families through advocacy, research, and support. By signing up, you become part of a passionate community committed to making a meaningful difference. Please fill out the form below to get started.